James and I began this blog at the very beginning of our pregnancy with Wyatt to share and update our new adventures as we became pregnant and start the new season of parenthood. Sixteen weeks into pregnancy, I had to go into surgery to ensure our son would not come too early and shortly after, we found out Wyatt has Congenital Diaphragmatic Hernia (CDH). This is our humble attempt at being transparent and hopefully sharing the joys and love of Christ through this roller coaster ride we're on. And now to share even more with the new miracle on the way.

Thursday, June 26, 2014

Feeding Camp Days 29 & 30

The end is near.  These last couple of days have been difficult to go through.  I'm just ready to be home.  Wyatt's been great but I think he's about had it too.

I am SOOO thankful for this place and our time here so please don't take my negativeness the wrong way.  I just miss my husband and my home!

We are all ready.  James and I know how to follow the protocol and Wyatt knows the expectations. PTL!!!
Yesterday and today have been great.  Wyatt is eating.

James is on his way back from a busy work week and will be here bright and early to pack us up while Wyatt eats breakfast and gets discharged.  We should be home by lunch!  Once we're home, we'll unpack and I'll get my grocery list started because they are only sending us home with that day's food for Wyatt.  :-)  
On Sunday, my parents are bringing Ronix, our doberman, back and our little family will be home under one roof.  :-) 

Meet Miss Liny!  She was Wyatt's first feeding tech.  We had her teaching us a lot throughout the month.  

I put this outfit on Wyatt before breakfast yesterday (day 29) and this picture was taken right before I took it off for his nightly shower.  That's huge.  lol.  

Meet Miss Cammy, Wyatt's Speech Therapist.  We are adding her name to the list of AWESOME STs Wyatt has had over the past two years.  

Meet Mrs. Cyndi, Wyatt's Occupational Therapist.  She can also be added to the list of AWESOME OTs Wyatt has had.  :-) 

Meet Mrs. Laura. Wyatt's psychologist and my first go to!  

Wyatt fell asleep watching TV before dinner time today.  This is his usual nap time but I put him down for a nap after lunch, instead of after snack, because he was TIRED.  He slept for 20 minutes, of course.  So, this might have been another 15-20 minute nap.  And he then of course was asleep for the night by 7.  :-)   

We didn't hit our goal of Wyatt not using his g-button anymore BUT he gained the skills, as did we, to get him there and quickly.  Thank you so much for all your prayers and we ask that you keep praying.  We can use all we can get!  God has been gracious in so many ways.  We've met some amazing families and I feel I've made a few really good friends.  Wyatt has grown and developed a lot.  James and I know we can get through anything (we actually already knew that) with God's strength and endurance.  

Thank you!  Thank you!  Thank you! 

Marshall spins with Wyatt!


It's a big deal that Wyatt is catching air.  He couldn't do that before!


1 comment:

  1. Such wonderful news! Happy home coming!

    ReplyDelete