Last night was rough. If you recall, I mentioned Wyatt coughing and throwing up as I was typing... Oh man. That continued. I went down to tell the nurse and while I was there, he did it again and one more time after that. Ahhh! One more time and I would have been out of sheets for his pack-n-play!
His lungs sounded great. I gave him a breathing treatment and some Zyrtec. It helped but he did continue to cough some. So I made the executive mom decision to not give him the rest of his feed. I disconnected his pump, turned it off and told the nurse that I choose sleep and quality of life (for last night and today). No one seemed to mind.
As for today. Wyatt did good eating by mouth. He ate around the same as yesterday but no throwing up during his sessions! PTL!!!!!!! That means he got more calories than he has in a while during the day.
I'm coming to terms with the idea that Wyatt probably will come home still needing to use his tube some. We most likely won't hit our goal. We do still have 9 days. The last day won't be a full day though. God can do BIG things in small amounts of time. It only took 6 days for creation to take place. I only need one little boy to take in 950-1000 calories a day by mouth. God is BIG! I am still praying for this miracle. I still expect this miracle. At the same time, I am preparing my heart to not be disappointed, to find peace in that moment while experiencing our son, eating however much he is eating right then and there.
Today Wyatt tried mashed strawberries, not pureed. He actually did good with them. His ST opened the bowl and I think I buried my face in my hands and just waited for him to lose his stomach... good news! He didn't. WOW! He did gag but recovered. He gagged a couple of times throughout the day on different bites of food but recovered each time. There's always this moment when he gags, I hold my breath, beg the Lord and Wyatt for him to swallow it down. His face turns red and I wait. Will he recover? Will he lose it? How much will he lose? Is this a stomach emptier? How much time is left? Are we going to get any calories in at all? And today, kept all his calories. *Taking deep breath of joy and thanksgiving!*
Today James got to come down for a short visit. Wyatt had daddy chase him all over the hospital. Upstairs and downstairs. :-) He got his workout in for the day! We also received a visit and dinner from the Adams' family! Robyn and Asher came once before. They know all to well the demands and tolls this place brings. So, it's very sweet of them to come down and bring dinner, a yummy one at that. ;-P
Tomorrow morning Wyatt has his upper GI (swallow study) at the big hospital at 9:45am. Wyatt can't eat or drink until it's over. Poor kid. Hope they are on time. He will miss breakfast and ST. so sad. That's such valuable time. :-( And I'd be lying if I said I wasn't nervous. The results of this could mean surgery or no surgery. I got smart today and asked his doctor more "what if" questions. I don't think I realized or just didn't want to realize what could happen. If part of Wyatt's stomach is caught up through his diaphragm, they will have to surgically pull it back down. Ahhhhhhhh!!! Another surgery. The thought makes my stomach churn. I'd take an under anesthesia scope any day over a surgery. I'm hoping we don't actually need either.
Please pray with us. We just need Wyatt's vomiting to decelerate. To be really honest, we have our days where I'm like WHOA, pump your breaks vomit but most of the time that's not the case. When he pushed with textures we see some. Here (the hospital setting) people don't want to see any vomit. And if they'd seen Wyatt a year ago, I cannot imagine what they'd be saying and test they'd be running. He's SOOOO much better than what we had.
|I find it pretty special to know the moms of these two. We all met long ago and who knew that one day we'd all be mothers to kiddos who struggle to eat and in the same month long inpatient program! God is purposeful!|
So anyway, I will keep you posted on test results and what's to be done. Thank you again for praying!!!