James and I began this blog at the very beginning of our pregnancy with Wyatt to share and update our new adventures as we became pregnant and start the new season of parenthood. Sixteen weeks into pregnancy, I had to go into surgery to ensure our son would not come too early and shortly after, we found out Wyatt has Congenital Diaphragmatic Hernia (CDH). This is our humble attempt at being transparent and hopefully sharing the joys and love of Christ through this roller coaster ride we're on. And now to share even more with the new miracle on the way.

Tuesday, September 11, 2012

Day 60 & 61

Day SIXTY: I was told Wyatt was a little whiney this morning and his nurse picked up and he was happy as could be. Already figuring it all out! ;). He was sleeping when I arrived after lunch so I just held him for a while. His nurse gave him his 2 month shots while I pumped, three total sticks. Then apparently she went to change his diaper and he made a #2 mess everywhere! I missed most of it but heard all about it. A bit thankful it wasn't me. :). Then I put some clean clothes on my sweet Wyatt and feel his feeding tube...it was covered in some slime feeling wetness so I called his nurse over and she realizes, it's been pulled out! Ugh!!! So they had to put it back in and get a X-ray to see if it was in the right place. It took a few tries to get it down but it floated perfectly into place! He does not like having that thing pushed down his nose. James and I just cuddled him for the rest of our time. The only change made today was to his milk amount, it's up to 20.5 per hour. :)

Day 61: Wyatt literally slept the entire time we were there today. He must be growing and/or using more energy to breathe. They took the presses down on his cannula to a pressure of 1 L. With parkland being a teaching hospital with ut southwestern we get a new doctor every so often. His new doc today opened up talk for ideas to get Wyatt home! No, we don't have a date or a timeline. Wyatt has to tell us with his progress when he comes home. Tomorrow his NP is going to bring up pulling his ND tube (milk) back (not out) and let it empty into his stomach instead of his intestines. How he handles that will determine what is next. They'll probably let however he handles that happen for a good few days. If he doesn't begin spitting up too much and gains weight still, this is good. If his stomach doesn't tolerate the feeds, they might consider a GI tube- surgically they would put a feeding tube in his belly- he wouldn't be able to pull that out. So please pray his stomach can handle the feeds and that he can even transition to not being on continuous feeds. Also, please pray for us- we are tired and just ready for Wyatt to be home and also scared to bring him home. It's comforting knowing he is being taken care of in amazing ways. With one push of a button, there can be 20 people bedside in a matter of 10 seconds. We just have to trust the Lord that when that time comes, we'll be ready. :)

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