James and I began this blog at the very beginning of our pregnancy with Wyatt to share and update our new adventures as we became pregnant and start the new season of parenthood. Sixteen weeks into pregnancy, I had to go into surgery to ensure our son would not come too early and shortly after, we found out Wyatt has Congenital Diaphragmatic Hernia (CDH). This is our humble attempt at being transparent and hopefully sharing the joys and love of Christ through this roller coaster ride we're on. And now to share even more with the new miracle on the way.

Tuesday, May 27, 2014

Good Jeans

Did I says jeans?  I mean GENES!  As in genetics!

We got our genetic testing results a few weeks ago and all test came back normal.  No chromosomal abnormalities.  No syndromes.  Just you're good 'ol random birth defect of CDH.  The geneticist said there really aren't any other test that can be done that would give us any answers.  She did say she'd like to do some more research on the computer.  I have a feeling she needs to find some medical "reason" and I don't need one.  I'm pretty sure we'll never hear from or see her again.

Now on to more good news.... IT'S HERE!  TOMORROW!  THE BIG DAY!!!

At 10 tomorrow morning Wyatt will be admitted to Our Children's House Baylor (OCHB) inpatient intensive feeding program.  James has taken the day off and we'll go down with a load of stuff to make our room comfortable and help pass our time while there.  James will then return home and I will stay with Wyatt.  He'll come visit and relieve me some.  How often will depend on his work schedule.  He will have to travel some while we're there.

Wyatt will be inpatient for 30 days.  That's a long time y'all.  Totally worth it but it's still a long time.  He might get a few hours on Father's Day to leave and celebrate dad outside of the hospital.  I'm hoping anyway!

My hope is to do some small updates each day... we'll see how that goes.  haha.

He's doing really great.  He's totally IN LOVE with cars and he tells me many times an hour how they "Go BEEP! BEEP!"  I love it!  :-)  He's learning more and more letters and animals.  He's able to point to some of them on the wall of his playroom.  Makes my teacher heart swoon each and every time!

Some Mommy goodies from my home group girls! 

Bring on feeding camp!!! 

1 comment:

  1. Casey....
    Our Children's House Baylor is going to be great!! Challenging at times, sure. But it is going to be great!! ;-D
    Hugs and prayers!! ;)
    Love you later, Raelyn