James and I began this blog at the very beginning of our pregnancy with Wyatt to share and update our new adventures as we became pregnant and start the new season of parenthood. Sixteen weeks into pregnancy, I had to go into surgery to ensure our son would not come too early and shortly after, we found out Wyatt has Congenital Diaphragmatic Hernia (CDH). This is our humble attempt at being transparent and hopefully sharing the joys and love of Christ through this roller coaster ride we're on. And now to share even more with the new miracle on the way.

Wednesday, May 28, 2014

Feeding Camp Day 1

Day 1 is almost complete.  

We got here and were directed to the upstairs nurses station.  We are temporarily in the resportory wing because that's where a room was available on our time and with a private bathroom!  I'll take it!! :). We needed to get in before our insurance year ends (end of June) as well as James job change, resulting in a whole new insurance company.  I did not want to deal with that mess.  Just wanted to get in not have to mess with payments and percentages or deductibles.  Our out of pocket max was met earlier in the year.  

Anyway, back to our day!  People were in and out all day long asking loads of questions and giving even more information.  I requested they remove the hospital crib so that we could use our pack-n-play.  I thought that might give Wyatt a little more of home.  I also BEGGED for an adult hospital bed for myself instead of the reclining chair.  Oh my goodness, all you poor husbands who have had to sleep in these while you're wives were in labor!  I'm so sorry!  I know James slept in one for like 4 days.  Love you honey!!  It's against policy for them to do either of these switching of beds but I guess if you talk to the right person, you can get things done.  On Friday, we will have to change rooms.  We'll be moved to the first floor, another room with a private bathroom.  Praising The Lord for the sweet little things that will make this trek a little bit easier!  
This was the room upon arrival.  It's got a nice view of the front entryway and a big tree.  I forgot to take a picture before Wyatt went to bed so I'll add the to tomorrow's post.  

This is the entry to our room.  It can be shut off from the bedroom so if I need to do something while he's sleeping I can.  Our new room will have a space like this as well.  

For feeding therapy today, I fed Wyatt infront of a feeding tech while she took notes for Wyatt's afternoon snack and his dinner.  His purée wasn't fortified with oil or oatmeal so it wasn't as caloric or thick as he's used to.  

Tomorrow morning the actual speech therapist will begin working with him and I'll be behind a two way mirror.  I have a feeling it's going to be very hard to not want to interven or enterject.  But I know it's for the better and they have perfected the process.  

Wyatt napped for over and hour today, which is on par for what he's been doing recently.  His 20 minute naps have grown significantly for us!  Isn't that funny, don't they usually start to lose more and more nap as they get older!!  I'll take it!  He also fell asleep without fuss.  He laid there for probably half an hour while I'm sitting outside his room in the "library" watching him on his monitor.  (Yes, I brought the monitor!  I like my comforts and my peace of mind!). 

Thanks for all your prayers and support.  We've got some  scheduling issues that need to be worked out but other than that, overall it's been a good day.  :). 

Wyatt out on the playground. 

My first hospital provided meal.  There were a few options.  I chose a nice healthy chicken breast with green beans and a salad.  My sugar cookies were full of sugar of course.  I figured I earned them.  :). I do have a fitness goal to not lose all the hard work I've been doing in boot camp and with my trainer over the past 2 months!!  

Oh yeah!  Almost forgot to mention, I met a new friend in person today!  Her daughter is attending the out patient therapy and will attend the inpatient therapy this summer.  We were connected by a mutual friend who knows both our stories and it was just cool to meet in person.  Small world, Big God!  


  1. Casey....
    "I also for an adult hospital bed for myself instead of the reclining chair. Oh my goodness, all you poor husbands who have had to sleep in these while you're wives were in labor! I'm so sorry! I know James slept in one for like 4 days. Love you honey!!" Crack. Me. Up!! ;-D
    Good luck!! Hugs and prayers!! ;)
    Love you later, Raelyn

  2. Wyatt looks like he's taking it stride. Hope your can make your permanent room as homey as possible. (I was just about to indulge in something sweet, but reading your resolution not to lose your hard earned progress, fortified my resolution too.) -- Love ya!