James and I began this blog at the very beginning of our pregnancy with Wyatt to share and update our new adventures as we became pregnant and start the new season of parenthood. Sixteen weeks into pregnancy, I had to go into surgery to ensure our son would not come too early and shortly after, we found out Wyatt has Congenital Diaphragmatic Hernia (CDH). This is our humble attempt at being transparent and hopefully sharing the joys and love of Christ through this roller coaster ride we're on. And now to share even more with the new miracle on the way.

Thursday, April 25, 2013

Room Air 100% of the Time / Matters of the Heart

Yup, you  just read that right.  Wyatt is officially ALWAYS on room air, even at night.  The pulmonologist called yesterday afternoon with the at home sleep study results.  He said everything looked really good.  His office said they would call our medical supply company to let them know they can come pick up every single tank of oxygen!!! 

 I would be lying if I told you Wyatt has been wearing it at night and this isn't really a big change for us.  We were putting it on him at night as ordered but in his sleep he would pull the nasal cannula down into his mouth or around his neck and up into his eyes.  We started just pulling it off when he did that in the middle of the night and then we just stopped putting it on altogether because it was so frequent and his O2 stats were always good.  His orders were for 100% oxygen with a 1/32 flow... that's basically NOTHING AT ALL!  But I will tell you, I have this wave of emotion and relief to know that truly no longer needs the oxygen.  It feels good to know God has us beating one of our battles!  Praise His name!  :-)  I am so thankful for the fighter that he has made Wyatt!  


Alright.  So yesterday we went to see Dr. Gibbin, Wyatt's cardiologist to get a check up on his heart.  It's been four months since we've been in.  He got an EKG and an echo cardiograph.  He did great for his EKG.  The nurses put like a million stickers all over his belly and chest and attached wires to each one of the stickers and took about a minutes worth of information.  A lot of work for a little amount of time.  Those results were good.  Dr. Gibbin came in to see us in between the EKG and echo to see Wyatt.  She complimented him and noticed his activity level.  {He had just woken up from a nap and was a very happy little boy.  He is also trying his hardest to crawl so I felt like the ring leader of a one baby circus trying to keep him still for these test and not letting him fall of the table.}  She also got to see a bit of his reflux at work.  She was really happy he aimed for me and not her.  I was happy about that too.  He hasn't thrown up on anyone else besides family yet (I don't count waiting room floors).  I would have been so embarrassed.  

Then we went in for Wyatt's echo.  He has a history of falling asleep during these but no such luck this time.  He wasn't interested in the Baby Einstein video they had playing for him- it didn't have any words but he calmed down as soon as I put my phone on baby signing time.  I don't what it is about it but babies love it!  

The results from the echo still showed a small PDA and PFO.  Both are small holes in the heart that should close either right before birth or shortly after.  The PDA is so small that Dr. Gibbin is thinking that we can wait until next Spring to do a catheter surgery, if it hasn't closed by that point.  She describes it to minor and quick.  Dr. Gibbin said we would just continue to watch the PFO until he's closer to 3 year old before doing anything there.  She said that could still close as well.  She all the pressures and flows in his heart and his pulsox reading was good and that's why she felt we could wait on surgery.  If it were harming him, the other things would be reading differently.  Also, she did not compare the size of the PDA to four months ago.  I am guessing it's not much different or maybe a tiny bit smaller but obviously nothing too significant or she probably would have noted it.  She wants to see us in six months.  I'll take that as a win!  :-)

We are trying to teach Wyatt "gentle touch" with the dog and us.  He loves to grab Ronix' ears and Ronix is so patient with him.  

He was trying really hard to pull himself up on the side of the crib.  He needs a little help though.  His OT thinks he'll be crawling in the next couple of weeks.  

All in all, we are so thankful.  God is so good.  I am so blessed to have Wyatt as our son.  I know I say it all the time but I honestly can't say it enough.  Thank you!  Thank you for praying with us and for us.  You have made a difference in our lives and help save our son.  :-)  


  1. HE IS SO CUTE!!!! This post is full of amazing news. Wyatt is amazing. Congratulations on such wonderful progress! <3

  2. Praise God for a healthy Wyatt and praise god for putting him in the hands of two amazing parents, he really is so blessed by your love, determination, stamina, intelligence, patience and mother's instinct! Hooray for God, hooray for Wyatt and hooray for you Casey and James!


  3. Casey....
    I'm back!! See, I have been absent from people's Blogs of late. Working hard on Little Miss Secretive Writing Project. Well, it is complete, at last!! {Lord willing. He calls the shots!!} Oh, it feels so good to be back!!
    "Always on room air"!! "Even at night"!! Praise God!! I rejoice with you and sweet Wyatt's progress!! He is definitely a fighter!! Like me. This will come in handy for so much more than just physical issues. It is called an iron will. ;-D
    I had a catheter surgery several years ago to "cure" my Wolff-Parkinson White syndrome. {A rapid, irregular heartbeat}. However, I was 18, not as little as Wyatt. I pray that his heart's holes close up!! ;)