James and I began this blog at the very beginning of our pregnancy with Wyatt to share and update our new adventures as we became pregnant and start the new season of parenthood. Sixteen weeks into pregnancy, I had to go into surgery to ensure our son would not come too early and shortly after, we found out Wyatt has Congenital Diaphragmatic Hernia (CDH). This is our humble attempt at being transparent and hopefully sharing the joys and love of Christ through this roller coaster ride we're on. And now to share even more with the new miracle on the way.

Monday, March 25, 2013

Two For One, Tomorrow


Whew....


Tomorrow we send our sweet little angel into surgery for the 3rd time in his short 8 months of life.  The past couple of days, I've caught myself choking up over silly things on TV or when I'm just looking at Wyatt being all big boyish sitting up, smiling and playing.  The love I have for my son is immeasurable and it is SO scary to send him into surgery.  Thankfully God loves him so much more than I do.  I know both of these procedures are probably simple enough for these doctors that they can do them blind folded but I don't think this mamma could ever get used to doing this.  Please pray for Wyatt, his lungs to be strong and to not need help after surgery and a fast recovery, the hands of his doctors and discernment during the actual procedure and for James and I as we approach surgery time (less then 12 hours away).  And then pray again for James and I... haha.  I didn't even want to put him to bed tonight.  I just wanted to snuggle and play with him.  I may grab him and let him sleep with me tonight, haha.  I am so thankful for how big and in control God is.  I don't know how people go through life without having faith in that fact.  Having Wyatt, I rest in that so much. If I didn't I don't think I'd be able to make it through this.  


To recap his surgeries (two in the same day) I'm just going to copy and paste from a previous post for the explanations.  :-)  

Urology:  I haven't talked about this one online at all because I felt like it might not be necessary and wanted to save Wyatt from any potential "embarrassment" in the future but now it's kind of important and we've been transparent thus far, so here it goes... When we had Wyatt, I was in a recovery room (for 5 freaking days... not a normal postpartum room) and a NNP came in and said, "XY, it's a boy!"  James and I didn't say anything at the time but we were like, "Uh, duh! We've known that since 16 weeks..." but she continued to tell his that his testicles had not dropped yet so they ran test just to make sure he in fact was a boy and that nothing else was wrong... thankfully, he is truly a boy.  :-)  Then later on, they still had not dropped and they weren't sure if they had developed so they had some blood work done to see if they were in his little body somewhere, and again, praise God, they were.  Fast forward to now, they still have not dropped.  They can be felt and they are close but not close enough and the urologist says that they would have been in place by now if they were going to move.  So.... this news = surgery.  The doctor made it sound like it's a pretty standard, I can do it in my sleep thing.  I'm hoping that's exactly what it is, in and out and never a problem again.  He did say that it could be one surgery or up to three.  I guess he doesn't know until he gets in there.  He also said that when both testicles fail to descend, something has gone wrong.  He said there is a chance Wyatt could lose one of them.  Please pray this does not happen.  Also, there is a 40% chance for infertility.  Again, please pray this is not the case.  We of course wouldn't know about the possible fertility issues until he (hopefully) gets married and tries to have kiddos with his wife.  Surgery, for the normal kid would be an in and out and recover at home procedure but with Wyatt being Wyatt and having to go on the ventilator  he will most likely have to be watched overnight.  James and I are also hoping that being put back on a ventilator, for any amount of time, doesn't give us any set backs with breathing or eating!  


ENT:  Wyatt had a sleep study done in January.  They goo-ed and taped him up good.  It was so gross but Wyatt, as usual, was a champ and just went with the flow.  Per those results, Wyatt had a nasal scope (I am totally not sure if that is what it is called or not, but that is what they did- stuck a camera scope thing down his nose, while I held him in my lap) and he needs a surgery.  His adenoids are a little large and he has some floppy tissue on his voice box.  She is going to remove both of these things.  The adenoids can be problematic and cause throat and ear infections and the floppy tissue blocks some breathing.  We were concerned with these results and wondering if this was a "necessary" surgery but anything blocking any breathing, I feel like is important.  I want to give Wyatt every advantage in the lung department I can to help him with growing!  This was also made out to be a "I can do it in my sleep, no big deal" surgery.  It's an hour long and for a normal kid, recovery would happen at home but again, we aren't normal and Wyatt will probably stay over night to be watched.  We have the same prayer request as for urology- that this does not create any backslides in his progress or development.  :-)  

Details:
Children's Legacy Campus, Plano 
Tuesday, March 26th @ 7:15am
surgery should last 2 hours
We should be staying the night but the doctors will make the final decision tomorrow morning.

Thank you for joining us in praying for Wyatt.  We cannot express how much your prayers have lifted us up through this journey of ours.  :-)

1 comment:

  1. Casey....
    First off, before I read this Blog post, I'm going to mention something. I love that picture of Wyatt!! ;)
    It is so natural and very, very normal to feel anxiety regarding trusting your baby to surgeons. You love Wyatt something fierce and only want is best for him!! Embrace this anxiety, plus your feelings. As you have already expressed, "God loves him so much". Allow the very fact that He is in control, watching over Wyatt, guiding the doctors' hands. ;)
    But then. As someone who has faced surgery four times in my life, the last one being less serious than a CDH repair operation or even craniosynostosis reconstructive surgery, I have an almost "child-like faith" in doctors!! But let me tell you something, Friend. When Mom faced an operation last December, I surprised myself. I freaked out!! ;)
    My prayers are being sent your way.... ;)
    --Raelyn



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