James and I began this blog at the very beginning of our pregnancy with Wyatt to share and update our new adventures as we became pregnant and start the new season of parenthood. Sixteen weeks into pregnancy, I had to go into surgery to ensure our son would not come too early and shortly after, we found out Wyatt has Congenital Diaphragmatic Hernia (CDH). This is our humble attempt at being transparent and hopefully sharing the joys and love of Christ through this roller coaster ride we're on. And now to share even more with the new miracle on the way.
Showing posts with label Dr. Richardson. Show all posts
Showing posts with label Dr. Richardson. Show all posts

Tuesday, November 20, 2012

Tippin' the Scales

Wyatt up WAY past his bed time, so I was trying to "wear" him out!  It's the only time I've gotten to use that sling.  He's been too "connected"

Daddy & Wyatt hanging out!  They always crack me up.  :-)

Tummy time with Nurse Angela. 
He fights me SO much more than he does with nurses and Daddy! 

Dr. Richrdson says we need to do more tummy times through out the day... so here we go!


Wyatt went in for a weight check today with our pediatrician, Dr. Richardson.  I am so excited to report that Wyatt weighs 11 pounds even!!!  That's almost an ounce a day (exact = 25 grams) since our last visit on Halloween!  YEA WYATT!!  He is 24.25 inches long and his head is measuring at 14.25 inches.  His head circumfrence has always been what is "behind" and "below the curve" but it's continuing to grow and Dr. Richardson said if there is going to be something that is behind in growing, it's that.  His weight is in the 3%... on Wyatt's curve nicely!  His length is in the 50% and his head circumfrence is <3%.... I'm good with it all because it is all growth and again, on his curve! 

Praise the Lord!!!!! 

On another note, in the last blog I memtioned one sentence being a entire blog in itself... well, here it is...

Wyatt gets my breast milk as his food.   He isn't ready for solids just yet.  I've been told to wait until month 6 or 7 since he was a 36 weeker.  In the NICU Wyatt wasn't gaining enough weight so the doctors started to fortify my breast milk with formula to make it higher calorie.  They even "spun" my milk to see exactly how many calories I was producing.  I think I said it before but I was secretly hoping I would have low calorie milk so that I could eat more cheese burgers, fries, pizza, ice cream.... I could keep going.  Haha.  BUT that was not the case and to be honest, I don't even know if it works like that.  :-)  My milk spun at 20.2 calories per ounce.  The docs ended up adding formula to make it 30 calories per ounce.  It doesn't sound like much but that's a lot for a tiny human! 

Fast forward to coming home, skipping everything I've talked about- the milk protien algergy, Wyatt being put on special formula and then back to my breast milk and then breast milk with special formula added again... We are here and I have some control over how Wyatt is fed.  Wyatt wasn't making it through the night without spitting up/refluxing tons and a fair amount in the day as well.  I just had a gut feeling it was the formula.  He spit more on it in the hospital too while I was going dairy free.  I hated it and just knew that is what was making him spit so much.  He's going to spit no matter what with his insides the way they are but it kills me to see him do it when he might not have to.  He is obviously so uncomfortable when it is happening- gut renching as I am sure many of you know, CDHer, premie or not. 

So... I began cutting back on the necate (smelly special formula) at night.  The spitting got better.  Wyatt was weighing in with an increase so James and I discussed it and we quit adding formula to his night time feeds altogether.  He gets the full amount during the day, just not at night.  He is sleeping the entire night, he may spit once post 6 AM sometimes not at all AND he is gaining weight.  Dr. Richardson felt comfortable with his gain and said she is okay but still wants me to talk to his dietitan at GI to make sure.  So, if he continues to gain we are good.  No one has given me a "goal" weight gain so we'll see what they say.  I'm comfortable with where we are at the moment.  I just pray that by the time we get to solid foods, we can be off the Neocate.  I'm also thankful for insurance because that stuff is $50 a can or more.  CRAZY!!! 

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I also wanted to add that if anyone reading this ever has any questions about what we've gone through or are going through, please contact me.  I know I had a hard time keeping up with anyone ahead of me on the CDH journey until we were in the "clear" so to speak, really post repair surgery and I follow a lot people that are "behind" us on the journey.  Even if it's just to have a specific prayer request, we'll pray for you!  We share in hopes of helping others and in doing so, again hopefully, glorify our God of miracles!