tag:blogger.com,1999:blog-8084983105457111603.post5321410471850617916..comments2021-03-21T21:30:28.753-07:00Comments on The Davises: Dear Feeding Tube, I hate you! Love Always, CaseyAnonymoushttp://www.blogger.com/profile/07986258621069917891noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-8084983105457111603.post-8074323384016068342014-03-13T09:52:47.925-07:002014-03-13T09:52:47.925-07:00Casey....
It has been one month since you last pos...Casey....<br />It has been one month since you last posted on this Blog!! I am missing Wyatt, my Kindred Spirit CDH Buddy!! Life has been seemingly busy for me lately. I wrote a fictional children’s story for March which was posted on my Blog, "Minuscule is good!". We have been watching my two-year old niece, "Amethyst", once a week. How are you, Friend?<br />-–Raelyn<br />Mary Louhttps://www.blogger.com/profile/01005199691237610718noreply@blogger.comtag:blogger.com,1999:blog-8084983105457111603.post-56997107287784477472014-02-16T18:04:35.373-08:002014-02-16T18:04:35.373-08:00Casey....
"Wyatt started with an NG tube (Nas...Casey....<br />"Wyatt started with an NG tube (Nasogastric intubation). This was a small rubbery tube inserted through the nose, down the back of the throat and can dump into the stomach or lower at the opening of the intestines... and maybe further?" Interesting. I did not know that about the NG tube!! It is a small rubbery tube inserted through the nose, down the back of the throat and can dump into the stomach or lower at the opening of the intestines....? ;)<br />"I don't know about you, but I like to look at Wyatt's face, all of it and having these big pieces of tape all over!". I second that!! ;-D<br />I have a little CDH Blogging Buddy who had the Nissin/Fundo procedure done. And, while I'm not criticizing their decision, I couldn't imagine never being able to vomit again. I just couldn't imagine. When you are sick with the stomach flu, as nasty as it is, vomiting actually helps make your tummy feel better!! ;)<br />I am praying that Wyatt's feeding tube will stop leaking!! Because, seriously. That would be annoying!! ;)<br />The video was quite educational for someone like me who has never seen a tubie be "fed"!! ;-D<br />I love what your Friend wrote!! Very good. Very, very, very good!! ;-D<br />"I try not to let life revolve around feeding Wyatt but I'll be really honest when I say, our lives do revolve around feeding Wyatt. It's the gift God has blessed us with. I mean that when I say "gift" and "blessed" because Wyatt is a precious gift and we are so very blessed by him. No, it's not always easy to be a momma of a tubie kid who refluxes and throws up and has therapy 2-3 times a week but I don't think I'd have it any other way. I cherish every milestone and moment we have with him. I dream of the day we can go to Chick-fil-A and order a kids meal, Wyatt eats it and I let him up to go play and then come back and trade in his toy for some ice cream. And the entire time, I don't worry one single moment about him gagging, choking or throwing up. I claim victory over that day. I claim victory over the day Wyatt eats and drinks enough food to not have to use his tube once. I claim victory over the day I call the medical supply company and ask them to never make another delivery again. I claim victory over the day we can say thank you and goodbye to our GI doctor. I claim victory over the day we take Wyatt's g-button out and throw it in the trash and NEVER LOOK BACK! I know these days are coming. I don't know when they will be but I know God is faithful and keeps His promises. I stand firm in His word and will work diligently to help Wyatt claim these victories as well.". I am praying that Wyatt learn how to eat "real" foods as he should!! Do not lose hope, Friend!! I have read of some CDH Kids who eventually lost their feeding tubes!! It can happen with Wyatt, right? ;)<br />Sorry. Long comment!! ;-}<br />--Raelyn <br /><br /><br /> <br /><br /><br />Mary Louhttps://www.blogger.com/profile/01005199691237610718noreply@blogger.com